Scientific MOOCs follower. Author of Airpocalypse, a techno-medical thriller (Out Summer 2017)


Welcome to the digital era of biology (and to this modest blog I started in early 2005).

To cure many diseases, like cancer or cystic fibrosis, we will need to target genes (mutations, for ex.), not organs! I am convinced that the future of replacement medicine (organ transplant) is genomics (the science of the human genome). In 10 years we will be replacing (modifying) genes; not organs!


Anticipating the $100 genome era and the P4™ medicine revolution. P4 Medicine (Predictive, Personalized, Preventive, & Participatory): Catalyzing a Revolution from Reactive to Proactive Medicine.


I am an early adopter of scientific MOOCs. I've earned myself four MIT digital diplomas: 7.00x, 7.28x1, 7.28.x2 and 7QBWx. Instructor of 7.00x: Eric Lander PhD.

Upcoming books: Airpocalypse, a medical thriller (action taking place in Beijing) 2017; Jesus CRISPR Superstar, a sci-fi -- French title: La Passion du CRISPR (2018).

I love Genomics. Would you rather donate your data, or... your vital organs? Imagine all the people sharing their data...

Audio files on this blog are Windows files ; if you have a Mac, you might want to use VLC (http://www.videolan.org) to read them.

Concernant les fichiers son ou audio (audio files) sur ce blog : ce sont des fichiers Windows ; pour les lire sur Mac, il faut les ouvrir avec VLC (http://www.videolan.org).


"Smash and Bombshell" the Musical. In Memoriam Eva Markvoort

This morning we did a bit of this musical-singing-rehearsal-thing, choosing "Smash the Musical" and... omigod I was such a disgrace... Smash or... flop? Well I for one know the answer... Really hope I'll do better next time...

"Let Me Be Your Star" lyrics.

I admire sooo much the interpretes of this great musical... 

Oh by the way, did you know Eva Markvoort? (Pic.)
Now that girl was a bit of a Marilyn... She is the Marilyn of the sick people, and of those who, for some reason, gave their heart to sick people... A Queen of Beauty in Canada, "Eva Markvoort (March 31, 1984 – March 27, 2010) was a young woman from New Westminster, British Columbia, Canada who died from cystic fibrosis at the age of 25. She blogged about her life, family and experiences, including undergoing a lung transplant and her subsequent transplant rejection, in her blog '65_Redroses,' which is also the name of a documentary film about her, 65 Redroses.
Eva's online identity is based on Canadian cystic fibrosis community lore that '65 roses' is a malapropism among children with the disease for 'cystic fibrosis'. Eva added 'red' because it was her favourite colour.
Despite early success following her double lung transplant in 2007, Markvoort died on March 27, 2010 at Vancouver General Hospital after a long battle with transplant rejection, while awaiting a second lung transplant. Shortly before her death, the 25-year-old theatre student received her degree from the University of Victoria at her hospital bedside.
On March 25, Markvoort wrote the last post on her blog:
I am not managing, not managing at all. I'm drowning in the medications. I can't breathe. Every hour. Once an hour. I can't breathe. Something has to change.
Markvoort had recorded an emotional farewell video on February 11, saying she likely had only days to live. These last spoken words to her web community drew more than 150,000 views in less than 24 hours. In addition to her degree, she also received the Canadian Cystic Fibrosis Foundation's Doug Summerhayes award for outstanding commitment to the cause. She was also a recipient of the Queen Elizabeth II Golden Jubilee Medal.
On April 30, 2010, Markvoort's family held a memorial service that was attended and watched by thousands of people, around the world. The celebration was streamed live to Eva's blog for her followers who could not attend in person. A version has been edited by Justin Cousineau and posted on Eva's blog, which continues to be updated by her family."

A Marilyn on medication, who loved life and knew how to live... and loved people and "the world at large"...

==> http://65redroses.livejournal.com 

For Eva (is she singing that one?...)



This is for you, Eva... I can't sing to save my life, but I'm pretty sure if you can hear... this, well you're gonna laugh... We miss YOU, Miss Marilyn...

==> "Let me be your star" audio file HERE.

Audio files on this blog are Windows files ; if you have a Mac, you might want to use VLC (http://www.videolan.org) to read them.

1 commentaire:

Ethics, Health and Death 2.0 a dit…

Source:
http://en.wikipedia.org/wiki/Eva_Markvoort